Thursday, May 24, 2018

Ectodermal Dysplasia Bill



This little girl brings so much joy and love to our hearts but it breaks mine to see how much she wants hair and normal teeth. She has Ectodermal Dysplasia.
Ectodermal Dysplasia (ED) is not a single disorder, but a group of closely related conditions of which more than 180 different syndromes have been identified. My granddaughter has a lighter case which effects her teeth and hair. The Ectodermal Dysplasias (EDs) are genetic disorders affecting the development or function of the teeth, hair, nails and sweat glands.
Please take time to contact Congress to help pass this bill. This is so important! Please help the thousands of children and adults including our granddaughter ! Click on the link to help!
This bill will mean that The Dental Insurance will except coverage and stop saying this is cosmetic . Not asking for anything free and no handouts, but to be able to use the insurance everyone is paying for already. Please help. It doesn’t take but a moment to click on this site and answer a couple of questions. 


http://www.congressweb.com/NFED/5/


Thank you, 
From Holly and family

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